Transverse Myelitis

Have been in hospital for almost two weeks. Lost all feeling in legs and hands now too, and pain in back and hands has increased to 11.
Am in hospital until I can walk and take care of myself. Neurological disease called Transverse Myelitis. One in a million people get it. Docs know nothing really. Am unable to think straight, although mental acuity is returning bit by bit. Suddenly lost all ability to move my lower limbs, three hours after the onset and trip to the ER  lost movement in hands. Cannot go home until I can walk some with my walker. Am up to painful shuffling: a foot at a time using the walker. Can’t fall, cracking my skull. This had already happened in the several weeks preceding. Not sure it would matter.

THIS is the year of the unexpected disease! Watch your back kids.
p.s. didn’t remember how to log in and post. Now that is fucked up.
I may walk in 2 or three weeks. Or never. Oh physical rehab how I do love thee

My friends are passing through Reno to Burning Man. I am missing my 9th year. I hurt. This is fucking depressing as hell. The steroids made me psychotic. Literally

Hospital food is hideous. No one visits because this place is out in the boonies. I need ice cream, cobbler, sweets, a decent cup of coffee.

Okay Done Ranting and Rambling. Burn On kids!

~Miss R